Newly Diagnosed
If you’ve recently been diagnosed, join the chat with others who are in a similar situation. For more information about navigating a diagnosis, click here.
When I say newly diagnosed…
Pin post
Report postWhen I say newly diagnosed…
I mean initially in 2022 and throughout 2023/24 PSA’s never > 10 ug/L but over the threshold nevertheless, MRI & PSMA PET CT – Gleason Score (GS) 6 on transperineal biopsy, Several ‘suspicious’ lesions PIRADS 2, 3, & 4, one minimal capsule abutment, the other mild capsule abutment. On active surveilance (AS)…because, well, you know, no evidence to indicate the presence of high grade primary prostate malignancy and/or distant metastatic disease…
August 2025 PSA’s still not exceeding 10 ug/L but MRI report came back with numerous suspicious PIRADS 4 & 5’s,only. One with broad capsular abutment the other extra capsular extension. Staged T3a N0 M0. Currently awaiting admittance for fusion biopsies.
I guess my gripe is with the AS guideline(s) afforded in general.
In any case, since last year and even beyond that, I have been redecorating my pelvic floor religiously with sturdy wood, with exercise of course 🙂 amongst other activities to strengthen physically/mentally and generally getting ready for the next part of my journey.
You can never become complacent about this insidious disease. Regardless of indications of a ‘low grade’ and/or ‘slow or very slow growing’ Prostate Cancer. Stay Vigilant.
P.S The person who designed the prostate gland should, under no circumstances be allowed to design any other organ(s) and their derivative and/or surrounding structures. :))
6
Comments (6)
There should be a ‘laugh’ icon. The number of PC sufferers in
Australia alone is around 26,*** per year. It is a poor ‘design’
I was first diagnosed as Gleason 6 in 2019, and then Gleason 7 by my third biopsy, and my PSA’s were steadily climbing, until in about June this year I said “That’s enough, this damn thing needs to come out”, had my surgery in early October. But I had an additional reason in that my dad died from prostate cancer and he was treated by radiation therapy, which might have been too little too late, but anyhow back then the robotic surgery wasn’t available in public hospitals. Anyhow of course I’m now dealing with the usual after effects, but I’m optimistic that the incontinence will eventually resolve with pelvic floor exercises, and I’ll never regret the choice I made.