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Got Hubby’s results post prostatectomy, don’t look good

Got Hubby’s results post prostatectomy, don’t look good

My husband had no symptoms, PSA of 6.4 (he’s 72) did further testing “just to see”, really unlikely anything is wrong; the ultrasound “surprised” our GP, needed further testing… MRI showed RAD5, Prostate not enlarged, biopsy indicated. Biopsy showed Gleason 9, cancer in 15 of 16 cores. PET Scan shows no evidence of “escape” from prostate capsule, no metastasis. The surgeon tells us surgery is “best” as it is still confined to the capsule

Had RP on 13/8; histology came back today: He has high-grade Gleason 9 disease with bilateral seminal vesicles invasion and positive surgical margins “The tumour is no longer prostate confined, with capsule penetration posteriorly, invasion into periprostatic fat and autonomic nerves, and invasion into both left and right seminal vesicles. Bladder neck invasion: negative. Lymphovascular invasion: Positive. Margins positive multifocal posterior. Pathologic stage T3b”

It sounds BAD

It also sounds like sitting in discomfort from surgery, with a catheter not coming out until Friday and the inevitable incontinence afterwards, that he was sold a pup. All this recovery from surgery that HASN’T got rid of the cancer, as it was suggested surgery would

Now we’re looking down the barrel of radiotherapy anyway… once his body is recovered “enough” to tolerate it

It’s too much

Should we just give up?

It feels like he’s just facing years of really unpleasant treatment, for WHAT???? It’ll still be there, and he’ll be even more diminished than he is now

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Comments (3)

Sounds challenging, Dee.

So glad to hear that Hubby has survived his prostatectomy and he’ll feel much better a few days after the catheter is removed. Once the initial shock, disappointment and frustration has subsided, you’ll find that there are plenty of good reasons to fight on.

Mark says it all. I am here after ten years of treatment from a similar, ‘surprise’ T3b start point and celebrate every extra day that I managed to survive.

PCFA offers plenty of resources and support!

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Sorry to hear about your husband’s results and for what you both must be dealing with. It’s very similar to my own diagnosis, almost 4 years ago… Gleason 9, seemingly confined to prostate from PET scan so went with surgery only to find out from there that it had escaped.

I just wanted to say don’t give up. Yes, it means more treatments but hopefully they will control the cancer for quite a long time. I know it’s bad news and I don’t want to dismiss that in any way, but the good news is that as far as spreading out from the prostate is concerned it’s been found quite early. Just takes things one step at a time, and (I knows it’s really hard) but try not to think too far ahead. It’s stressful enough without adding a bunch of whatif’s and mayby’s to everything. It gets a bit easier when you have more information and you know what’s the plan is and then you can just focus on the next results which will hopefully indicate the plan is working. Best of luck to you both.

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Hi Community Member, 

Thank you for posting your message on the Online Community. 

You might find it useful to start with the links below for further information. 

https://www.prostate.org.au/recurrent-or-advanced-prostate-cancer/

If you need support, please don’t hesitate to reach out to our Prostate Cancer Specialist Nurse Telephone service. 

We can help provide more information about treatment options and support for you and your husband

You can reach us on 1800 22 00 99 (ask to speak to a nurse), or follow the link to request a call back https://www.prostate.org.au/nursing-support/ and we’ll get back to you. We’re here to help.

Kind regards,

PCFA’s Telenursing Team

Phone: 1800 22 00 99

e: [email protected]

prostate.org.au

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